For decades, the hemophilia community has worked together towards a brighter future… for our families, and for the next generation. Now the time has come for us to pass on something powerful: knowledge.

My Life, Our Future is a nationwide campaign for progress in hemophilia. Leaders in our community have come together to offer genotyping at no or very low cost, so that you may gain a deeper understanding of your hemophilia today, while helping to advance the breakthrough treatments of tomorrow.

This incredible initiative will become available in 2013. Until then, we invite you to learn more via the informational video below and to sign up to receive updates from the National Hemophilia Foundation.

the quick factsstay informed

 

the key to unlocking hemophlia

Genotyping is the process of identifying the genetic code responsible for an individual's hemophilia. Much like a fingerprint, your genotype can provide meaningful information about your hemophilia to you and your doctor. The process begins with a small blood test, and results in personalized knowledge. Genotyping has the power to:

  • Predict bleeding severity
  • Help determine inhibitor risk
  • Identify potential carries in your family
  • Aid in family planning and pregnancy care
  • Serve as a critical roadmap to greater scientific understanding and new treatment approaches
 
 
 
 

united in progress: the founders

 

A not-for-profit organization representing over 130 Hemophilia Treatment Centers, the American Thrombosis and Hemostasis Network will ensure the collection and secure storage of information, while also supporting centers who offer this service.

Dedicated to finding better treatments and cures for inheritable bleeding disorders, the National Hemophilia Foundation is organizing and educating the community around this critical initiative.

A state-of-the-art laboratory, Puget Sound Blood Center has world-class expertise in hemophilia mutation analysis, and will provide confidential genetic testing and secure data transfer.

A committed community partner whose mission is to empower people with hemophilia to live the lives they choose, Biogen Idec Hemophilia is honored to provide financial support and leadership. We are the world's oldest independent biotechnology company, backed by over 30 years of scientific innovation and a passion for progress.

 
 
 
 
 
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